Tuesday, June 14, 2011

Attention Prayer Warriors..

I have decided that it would be nice to write about my precious girl and all of her experiences to share with others who love her. Avery is our everything. Robbie and I have been blessed more than we could have ever imagined with our beautiful daughter, Avery Lynn. I could write thousands of words describing the emotional journey that brought us our daughter, but let's just say that I feel that this particular scripture describes to a 'T' our journey for Avery...

 
"I prayed for this child and the Lord answered my prayers."
1Samuel 1:27

 
For those of you who know us well, you know of our struggles to become parents, but God is so good and is ever-present in everything. I truly believe that in our struggles, we were molded into the parents that we are today.

 
And now a little history to lead us to our present. When I was 19 weeks pregnant with Avery, I was delivered this news, "it's a girl...and there is something wrong with her left kidney." My own history repeating before our eyes. We prepared ourselves with numerous extra OB visits, specialist consultations, and meetings with Avery's surgeon. And on November 11, 2009 at 6:18 in the evening, Avery Lynn came into the world and we were never the same. Being a parent is getting a small taste of how the Lord must feel about us, His precious children. Avery is a gift and we adore her.

 
Avery had her first test on her urinary system, a VCUG, when she was 24 hours old. Here is a picture of her before her test....

 
 
It was so hard to let tests be done to our little girl. It still is. Keep reading....
 
After the first test, another followed at between 2-3 months of age called a Mag3 scan. This test involved an IV, catheter, and radioactive material all while being strapped down for an hour. The test was extremely difficult to watch as you could imagine. Here is a picture of Avery on the day of this test....
Immediately following this test we were sent to the surgeon's office. There he informed us that he had to operate and soon. My heart ached at the thought of handing my precious tiny baby over to have surgery. Avery would need to have a heminephrectomy..meaning a removal of a large portion of her left kidney and extra ureter tube. This was an emotional roller coaster that left us no choice but to hold on tight to each other and ride on through. God is always, always there. Right around this time we lost one of our strongest supporters, Robbie's mom, Peggy. We love Peggy so very much and miss her more than words can describe. When Peggy was in the hospital, Avery 'sent' her one of her stuffed animals, a lamb to keep her company and let her know that she was dearly loved. Peggy requested that the lamb be with Avery on the day of her surgery. So, tucked into a little bag on her surgery bed, the lamb sat and watched over Avery...and so did Peggy. Now before jumping to that, let me say that Avery's surgery was post-poned twice, once for a unrinary infection and once for unusually low temperatures. But in May 2010 it was time. Avery's surgeon allowed us to pray with him prior to the surgery. He and the ETCH staff were wonderful. This part of our lives is painfully hard to talk about. Even typing this is tightening my chest, but I want to share what really happened. Now, here is a picture of Avery and I right after her surgery.
Okay now in order to show you how miraculous her recovery was, this picture is of my little fighter 2 weeks after her surgery....
Oh yes, we are at the beach...a much needed trip! 
Avery has had no problems since her surgery. She is remarkable. Her scar is about 1.5 inches, whereas mine is around a foot. Now this is where the prayer warriors come in. Although the kidney surgery is over, we are left with the possibility of needing a second surgery to repair issues with her bladder associated with a blockage from her extra ureter tube. This Friday, June 17 2011, she will be having another VCUG test to determine whether or not the surgery is needed. We need you, prayer warriors, to pray that the Lord will protect her and deliver her from needing another surgery, and that He will allow us to feel His presence and trust in Him no matter the results. Also that Robbie and I can find strength in Him to get through this. Lastly that He will provide comfort and peace to Avery during the test, since she will have to be secured to a table and catheterized again. I will share the results of the test on here over the weekend. Thank you for you prayers. And please know how much we love you all, and can feel your support no matter where you are. God's plan for us is perfect, have no doubt. Avery is a precious gift, let's lift her up! May God bless you and all you do.
love- Katelyn
Avery now, 19 months

2 comments:

  1. Auntie says "Amen!" Know that Little Miss will be held up to the Lord in a special way at Mass on Friday morning, here in Pittsburgh. Kate, you have done a wonderful job journally Avery's journey - this is a great way to keep us all posted. Uncle Jim and I send you, Robbie and sweet Avery our love and prayers.

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  2. Avery, my love. You are most precious in our sight and even more so in God's. Your Great Granny once told me not to pray for a miracle for her but to pray for strength and courage for the journey. The funny thing is, I know that she is praying for a miracle from above right now for you and likely has gathered all those who love you in heaven above to do the same- a heavenly host of prayer warriors-your Granny and Grandpa Liles, your Great Papa and Great Uncle Dave to name a few. Still, I am reminded, as my dear Mother once told me, we are in God's hands. Who else could hold us so tenderly?? Love reaches beyond all hardships and so it will once again on Friday. I would gladly take your place if that would solve things. I wish that I could but since I can't, I will remain steadfast in prayer and ready to "Rocky, Rocky, Meme" when you need me. I love you, baby.

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